Rocco in the City - Our NYC trip
Back in September, Rocco had an MRI of his brain and spine done here in Florida. The results came back and showed that one of the lesions on his brain had increased in size. On the MRI report it said this increase in size could possibly be due to malignant degeneration. My heart instantly sunk. I quickly reached out to a highly recommended Neurocutaneous Melanocytosis (NCM) expert, who is a neuro-oncologist at Memorial Sloan Kettering (MSK) in Manhattan. We consulted with her when Rocco was first diagnosed with NCM. A week later we met with her virtually. I don’t think I stopped crying that entire week. When we met with the NYC doctor virtually, she told us that although one of the lesions increased in size, she did not feel that it was due to malignant degeneration. She said it appeared to be growing because he is growing. The relief I felt after hearing this was immediate. I felt my whole body relax. I was so thankful. She explained being that “malignant degeneration” was writt...